As a new patient or as a relative or friend of a new patient, you may also find the following websites useful. Although every diagnosis is different, the provided information may guide you to ask your healthcare team the right questions and may also help you to find the support and practical advice that you are looking for.
Pancreatic Cancer UK
Pancreatic Cancer UK is the only national charity fighting pancreatic cancer on all fronts – support, information, campaigning and research. Our free and confidential Support Line is a lifeline for thousands of people affected by pancreatic cancer. Our specialist nurses understand the issues you might be facing and their expert help and advice will support you in coping with the disease. We also have the most up-to-date information on everything you need to know about pancreatic cancer through our website and publications.
Support Line 0808 801 0707 weekdays 10am-4pm
NET Patient Foundation
The NET Patient Foundation is a charity operating in the UK & Ireland that offers information and advice to those affected by neuroendocrine tumours. You’ll be able to find information booklets, forums and details of support group meetings.
Macmillan Cancer Support
Macmillan provide practical, medical and financial support and push for better cancer care. Macmillan Cancer Support improves the lives of people affected by cancer and also help carers, families and communities, guiding people through the system and supporting them every step of the way.
Cancer Research UK
Cancer Research UK funds over half of the UK’s cancer research, including the life-saving work of over 4000 scientists, doctors and nurses fighting cancer on all fronts. Every day, their researchers make cutting-edge discoveries in labs and their doctors and nurses pioneer new treatments with patients in hospitals. Cancer Research provides reliable and accessible information about cancer for a wide range of audiences.
The Carcinoid Cancer Foundation
The Carcinoid Care Foundation is a nonprofit American organisation chartered by the State of New York for the purpose of encouraging and supporting research and education on carcinoid and related neuroendocrine cancers. This website is constantly being updated as new information and research results bcome available.
Caring for Carcinoid Foundation
CFCF is an American charity that has established itself as a leading and efficient non-profit making funder of carcinoid cancer and related neuroendocrine tumor research. In addition to research, CFCF provided support to patients and their loved ones through its award-winning website.
Insulinoma Support Network
This site provides an insulinoma community that aims to raise awareness and provide up to date, easily accessible information. Often, the information on insulinomas is grouped with other neuroendocrine tumours. This site provides a unique platform by bringing together information on this rare condition in one place.